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The Mission of the TRANSPLANT COMMUNITY is a united effort to support UC Health in making the whole process of an organ transplant from the pre to the post a comfortable experience. We are diverse and dedicated individuals who support and recognize the UC Health Transplant program as a leader in its field. Our group consists of donor families, organ recipients, organ donor families, and staff. Our Mission is to constantly develop ways to improve everyone’s quality of life touched by organ transplants through awareness, education, financial support, and advocacy.
The Liver Life walk is a signature event of the American Liver Foundation(ALF)
Providing an Inspirational and festive environment . Liver Life walk events give participants an opportunity to come together and raise awareness and funds in support of the liver community.
When: Saturday June 8th
Where: T.M Berry International Friendship Park ( Purple People Bridge)
1.5 mile walk
It is that time of the year again for the planning of the 2024 Transplant Community picnic. This event is planned for June 29, 2024 at the same park in previous years. The park is Hopewell Meadows Park in Symmes Township. Brian is looking for help once again to plan this great summer event. Always a great time with great food and conversation, Brian wants to start planning and working on all the details in the very near future. Please contact Brian at 513-383-3600 or email at brian@tmcbuild.com and let him know you would like to help.
Thanks in advance for contributing to this fun in the sun event.
It is that time of the year again for the planning of the 2024 Transplant Community Golf Outing. This event is planned for September 14, 2024 at Pleasent Hills Golf Course in Monroe. Richard wants to start planning and working on all the details in the very near future. Please contact Richard at 513-571-4244 or email at Richardfugett@yahoo.com and let him know you would like to help.
Thanks in advance for contributing to this great fundraiser.
Life with Biliary Atresia and Beyond: Progressive Familial Intrahepatic Cholestasis
February 29 | 6pm ET
This year’s first Life with Biliary Atresia and Beyond educational webinar, presented by William F. Balistreri, MD, will discuss the definition, cause, new approaches to diagnosis and novel therapies of Progressive Familial Intrahepatic Cholestasis.
We are excited to announce the recipients of ten new liver research awards funding early career scientists working in basic and translational liver disease research. Three researchers will receive a Liver Scholar Award and seven will receive a Postdoctoral Research Fellowship Award to help advance research in liver biology and disease. Learn more about the review process and meet our 2023 award recipients below.
The Food and Drug Administration (FDA) has just granted accelerated approval of a first of its kind drug therapy, resmetirom, for the treatment of nonalcoholic steatohepatitis (NASH) in patients who have progressed to fibrosis. NASH, now called metabolic dysfunction-associated steatohepatitis or MASH, is a dangerously progressive form of nonalcoholic fatty liver disease* (NAFLD) and causes inflammation in the liver and liver damage.
“American Liver Foundation applauds the FDA approval of the groundbreaking new drug therapy treatment, resmetirom, for patients with NASH who have progressed to fibrosis,” said Lorraine Stiehl, Chief Executive Officer, American Liver Foundation. “Until now, there were no approved treatments for NASH and today’s decision by the FDA provides hope to millions of Americans dealing with this dangerous and progressive disease.”
In the United States, NAFLD affects approximately 80-100 million people, among whom nearly 25% progress to NASH. Many do not know they have the disease. 11% of NASH patients will develop cirrhosis or liver failure. NASH may progress to hepatocellular carcinoma (HCC). NASH is expected to become the leading cause of liver transplantation in the United States by 2025.
“Innovation is the key for treating all types of liver diseases, especially one of this magnitude,” said Emmanuel Thomas, MD, PhD, Board Chair of ALF. “We applaud the innovation shown by Madrigal Pharmaceuticals in developing the first-ever FDA-approved treatment for NASH in patients with fibrosis. While the target patient population for this drug will initially be limited, it is our hope that it will eventually be made available and affordable to all those affected by NASH.”
*Note: The nomenclature for NAFLD and NASH recently changed to metabolic dysfunction-associated liver disease (MASLD) and metabolic dysfunction-associated steatohepatitis (MASH) respectively. Learn more about the terminology changes and how it affects patients by watching this video.
Editor’s Note: The brand name for resmetirom is Rezdiffra. Patient information regarding the new drug therapy is available from the drug manufacturer found here:
https://www.madrigalpharma.com/wp-content/uploads/2024/03/Patient-Prescribing-Information.pdf
Volunteer to go Visit Patients who have been recently transplanted, let them know you have also had a transplant, let them ask questions and share your personal experiences, its always comforting to speak to someone who has been through what you have .
How to Sign up to Volunteer and visit with post-transplant, inpatients at UC Health:
First, paste this link into your browser or click on it : https://www.uchealth.com/en/volunteering
Once on the page, scroll down and look for the box that says “How To become a Volunteer.” Click on the box that reads Adult.
On the next page look for the section that says: “How To Become A Volunteer” and at the end of the section, click on the link that reads click here to fill out the application. Fill out the application and you will be on your road to becoming a peer support person!
Once you have signed up, you will be contacted by UC Health Volunteer Services. UC Health Volunteer Services will tell you about your journey to become a Transplant Patient Volunteer. They will set up an interview, schedule your orientation meeting, tell you how to get tested for Tuberculosis, and start your background check. Once you have completed all steps, you will be informed when you will be able to visit patients and help them along their transplant journey
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